NEWS

Rare Disease Day 2023 is a tricky day for orphan drugs Sharing colours sometimes takes time
I remember very well the day I asked the G-BA for permission to speak about the specific German benefit assessment of orphan drugs....

Why the G-BA statement on limited resources is favourable to AMNOG 2023 G-BA work programme
The G-BA took the opportunity to announce its AMNOG work programme for 2023 at a press conference on 14 February 2023. The...

February is a special month for orphan drugs at the G-BA in 2023 Rare Disease Day can come
While the last day of February is known as the Rare Disease Day, the first days of February 2023 mark the start of changes for rare...

November Intermezzo in Spain World Orphan Drug Congress Europe on 14-17 November 2022 in Sitges, Spain
Why does this year’s World Orphan Drug Congress in the province of Barcelona still feel so special? I DID NOT represent my former...

What Is a Fair Reimbursement Price for Orphan Drugs in Germany?
In the current draft of the Act on the Stabilisation of Finances for the Statutory Health Insurance in Germany, the threshold for...