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November Intermezzo in Spain World Orphan Drug Congress Europe on 14-17 November 2022 in Sitges, Spain

November Intermezzo in Spain World Orphan Drug Congress Europe on 14-17 November 2022 in Sitges, Spain

by Meriem Bouslouk-Marx | Dec 6, 2022 | News

Why does this year’s World Orphan Drug Congress in the province of Barcelona still feel so special? I DID NOT represent my former employer, the Federal Joint Committee (G-BA) in Germany. I DID NOT present any update on the G-BA benefit assessment of orphan drugs under...
What Is a Fair Reimbursement Price for Orphan Drugs?

What Is a Fair Reimbursement Price for Orphan Drugs?

by Meriem Bouslouk-Marx | Jul 18, 2022 | News

In the current draft of the Act on the Stabilisation of Finances for the Statutory Health Insurance in Germany, the threshold for orphan drugs shall decrease from currently €50 to €20m. A déjà vu? But wasn’t it €30m last time this was mentioned? Would €25m be a...
Revision of the EU Orphan Legislation – Implications for the German Benefit Assessment RAPS Euro Convergence on 10-12 May 2022 in Amsterdam, Netherlands

Revision of the EU Orphan Legislation – Implications for the German Benefit Assessment RAPS Euro Convergence on 10-12 May 2022 in Amsterdam, Netherlands

by Meriem Bouslouk-Marx | Jun 1, 2022 | News

Back on stage! This year’s RAPS Euro Convergence in Amsterdam gave Dr. Meriem Bouslouk-Marx the floor to outline the interdependencies of EU and national legislative reviews. She analysed the implications of potential changes of the EU Orphan legislation such as...
Showing my stripes for this year’s Rare Disease Day

Showing my stripes for this year’s Rare Disease Day

by Meriem Bouslouk-Marx | Feb 28, 2022 | News

Oral and maxillofacial surgery was one major discipline during my last years of dental medicine at the Friedrich Schiller University in Jena. I was intrigued by the strange names of diseases and syndromes such as Hodgkin’s, non-Hodgkin’s and...
How can Germany pay for innovative therapies in the future? Fair access to medicines in the future – A challenge not only in times of corona. 11 March 2021, online event

How can Germany pay for innovative therapies in the future? Fair access to medicines in the future – A challenge not only in times of corona. 11 March 2021, online event

by Meriem Bouslouk-Marx | Mar 15, 2021 | News

With Advanced Therapy Medicinal Products (ATMPs), especially those for the treatment of rare diseases – innovative but also very expensive therapies – entering the market, a new challenge for payers has arisen. How can innovative medicinal products be financed in the...
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